Long Covid advocate Jasmine Hayer joins Covid Aid board as Trustee
Long Covid advocate, writer, poet, creator and coach, Jasmine Hayer has been appointed as a trustee for Covid Aid. As an Ambassador for the charity and through her own work and projects, Jasmine has been helping raise awareness of Long Covid and supporting other sufferers.
Jasmine caught Covid at the start of the pandemic (14th March 2020) and has been living with Long Covid ever since. She has been actively supporting others who have been affected and raising awareness of Long Covid through various platforms including The Telegraph, Stylist Magazine, BBC News and BBC Asian Network.
In addition to this her nationwide project ‘The Hidden Voices of Long Covid Project’ gained great recognition as she gathered and presented a digital gallery of 200+ fellow sufferers stories. This was provided to the National Institute for Health Research (NIHR), which was then sent to Long Covid clinics.
Before the pandemic started, Jasmine was a community growth expert for purpose-led organisations. From working in creative growth management and celebrity and influencer marketing at the UK's biggest charities and broadcaster: Cancer Research, Comic Relief, Stand Up To Cancer UK and Channel 4, to curating member-led spaces for entrepreneurs to grow their startups.
Through the despairing experience of having Long Covid, causing widespread damage, she lost her ability to walk and talk and wasn’t able to continue in her job . She sought purpose as a means of survival and became a prominent long covid advocate and blogger, patient expert, poet and entrepreneur, with plans to launch My Symptom Tracker in 2023.
Alongside this, she's a qualified Ayurvedic consultant and certified holistic life coach, passionate about helping people to find and connect with their purpose; especially those suffering from chronic illness and mental health challenges.
Jasmine said: “I'm very grateful to Covid Aid for amplifying the hidden suffering of Covid-19's wrath, putting lived experiences at the heart of the charity and providing practical support to help Long Covid sufferers and others affected by coronavirus, especially in a time where the media narrative is that 'Covid is mild'.
“My aim as a trustee is to support and guide Covid Aid with the unique perspective of experiencing severe Long Covid, since the start of the pandemic and continuing to be a guinea pig at the forefront of research.
“Using mine and others’ lived experiences of Long Covid, together with my background of growing communities and charities, I hope to add a voice to the trustee board to help develop the best possible support for Long Covid sufferers and others tragically affected by Covid-19.”
Michael MacLennan, founder and Chief Executive at Covid Aid, said: “All of us at Covid Aid are delighted to have Jasmine joining the board as a trustee, having already played an important role in building and growing the charity to support more than 200,000 people across the UK.
“Through her advocacy work she has provided a voice and fought for those with Long Covid, and her tremendous range of skills and experience will be a crucial benefit as the charity looks to provide vital help to the more than two million people in the UK living with Long Covid. As we enter another winter of uncertainty – and with already high rates of infection again on the increase – the need for support, research, and visibility is greater than ever.”
Covid Aid launched in May 2021 to support all people affected by the Covid-19 pandemic across the UK. The charity has since expanded its service offerings to encompass grief and bereavement counseling and Long Covid support – including through its awards-nominated Support Community – in addition to collaborations with national bodies including the NHS and Asthma & Lung UK on innovative Covid-19 resources.
Relevant links
My Symptom Tracker – created by Jasmine to make sense of her symptoms, find my triggers and work out what was working. “Now, I'm working to launch it as a product to help other sufferers”
Sharing my story and raising awareness of long covid:
Article for The Stylist: Coronavirus: “I have ‘long-term Covid’, here’s how it’s affecting my fitness”
Interview in The Telegraph: ‘My long Covid is so bad I struggle to talk – but doctors dismissed it as psychosomatic’
Interview on the BBC: Long Covid: 'I have to choose between walking and talking'
Interview on the BBC: 'Long Covid has destroyed me but I am fighting back'
Interview on the BBC: Long Covid: Fears others will suffer when lockdown lifts
Published 01 November 2022
Written By Becca Guiller