In this article Alice Peck, Director of Communications and Co-Founder of The Wren Project, tells us more about the charity which launched this year – and how it aims to assist those living with Long Covid.
The Wren Project, a UK charity which supports people diagnosed with autoimmune disease, now extends its support to those with Long Covid.
While there is still no definitive understanding of the causes of Long Covid, increasing research points to the presence of auto-antibodies to suggest a link between Long Covid and autoimmune disease. Higher incidence of Long Covid in women, as well as strikingly similar symptoms (persistent fatigue, headache, shortness of breath, anosmia, muscle weakness, intestinal disorders, and skin manifestations) also point to an autoimmune component.
In autoimmune disease, auto-antibodies attack the body’s own proteins, causing an inflamed immune response that affects different organs and systems of the body. In the UK, 6%, or 4 million people, are known to live with at least one autoimmune condition. 75% of those diagnosed are women. There are over 80 identified autoimmune diseases, with incidence rising by 3 - 9% each year. The social costs of autoimmune disease are huge; just three (type 1 diabetes, rheumatoid arthritis, multiple sclerosis) cost the UK more than £13 billion a year. Unemployment amongst sufferers is 13% (almost three times higher than the UK population as a whole).
The Wren Project does not respond to the medical symptoms, but to the emotional and psychosocial impact of diagnosis which, research and personal experience show, is acute and life changing. Studies capture the sense of: stress, isolation, strained relationships, and negative coping strategies. 80% of people with autoimmune disease and their families attest to the serious impact autoimmune diseases have on everyday life; 66% of people with autoimmune disease have mental health problems.
Receiving a diagnosis of autoimmune disease involves a sudden departure from what is normal and familiar. Individuals are forced to accept a new identity which they did not choose. The Wren Project supports people during these early years following diagnosis - the years which are most destabilising and hard. We provide support at a time when individuals are passed from doctor to doctor, with little understanding of cause, with no medical cure, when diagnoses are changing, when advice is confusing.